tag:blogger.com,1999:blog-501648482711755052024-03-12T21:25:53.946-04:00Brace YourselfHey, I'm Katie! This is my experience with scoliosis, and I want to help any of you who have it by providing some tips and helping you know what to expect from bracing to surgery. So when life throws you a curve... brace yourself!Katiehttp://www.blogger.com/profile/17203510219768795587noreply@blogger.comBlogger85125tag:blogger.com,1999:blog-50164848271175505.post-91669819929736007842020-06-28T00:57:00.001-04:002020-06-28T00:57:18.844-04:00Hard to Help<span style="font-family: Verdana, sans-serif;">We are living in strange times. Lately I've felt a sense of complete helplessness. People all around are begging for help, and yet when it comes down to it, they don't actually want your advice or your offers. People are hard to help.</span><br />
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<span style="font-family: Verdana, sans-serif;">After wearing my brace for a couple years, the "coolness" of it all wore off and I did NOT enjoy wearing it. It was hot, difficult to breathe in, and I had a pinched nerve in my hip which caused horrible pain while in the brace. My mom would constantly poke me in the ribs and remind me to wear it, along with the "you don't want to end up having surgery" speech. I knew she wanted the best for me and that she didn't actually want me to suffer through another 23 hours of wearing a hot, constricting, plastic shell. But more than that, she didn't want me ending up with two 18" rods screwed into my spine. Many times I would lie in bed thinking, "No one understands what it's like. If they could just spend ONE HOUR in my brace, they'd never tell me to put it back on." Within the next few years I had two friends in a back brace. And I have to imagine that if they had told me to go put my brace on, I'd do it without thinking twice. They knew what it was like. And somehow, that made it better.</span><br />
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<span style="font-family: Verdana, sans-serif;">When people offer to help, we say:</span><br />
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<ul>
<li><span style="font-family: Verdana, sans-serif;">"They just don't understand. They haven't been through this and can't help me." </span></li>
<li><span style="font-family: Verdana, sans-serif;">"I can't believe they said (fill in the blank with some ignorant/insensitive, but well-meaning statement)."</span></li>
<li><span style="font-family: Verdana, sans-serif;">"They must think I'm incapable."</span></li>
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<span style="font-family: Verdana, sans-serif;">When people don't offer to help (possibly because they are afraid of the judgment they will receive), we respond with:</span></div>
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<li><span style="font-family: Verdana, sans-serif;">"Where were they? What kind of friends are they?"</span></li>
<li><span style="font-family: Verdana, sans-serif;">"They're so self-centered that they don't even see that I'm hurting."</span></li>
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<span style="font-family: Verdana, sans-serif;">The truth is, our human nature tends to judge and assume. We live in a time where helping is so hard. We are expected to say the right thing at the right time with the right motives and just the right amount of empathy. It's much easier simply not to help. But in the end, people will remember that you tried to be there. Let's be quick to help, slow to judge, quick to listen, and accept the fact that sometimes we need help from those we wouldn't necessarily expect. </span></div>
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<span style="font-family: Verdana, sans-serif;">Oh, and June is Scoliosis Awareness Month. Go get your kids screened. (Coming from someone who's "been there.")</span></div>
Katiehttp://www.blogger.com/profile/17203510219768795587noreply@blogger.com3tag:blogger.com,1999:blog-50164848271175505.post-74072762081905627502019-12-20T20:57:00.001-05:002020-02-23T12:37:24.534-05:0026.too many<span style="font-family: "verdana" , sans-serif;">If I could rename this post, I'd call it 1.too many, because running is one of my least favorite activities (right there with dentist appointments). My feelings toward running stem from only two experiences in high school. Running the mile in gym class was always a very mediocre task. One year my school organized a "Fun Run," a deceitfully named event to pledge money every lap a student ran. I don't think I ran much more than a mile or so, but I still felt as if my lungs would burst, I would vomit, or something tragic would happen. I decided right then and there that running was simply not my thing.</span><br />
<span style="font-family: "verdana" , sans-serif;"><br /></span><span style="font-family: "verdana" , sans-serif;">Fast forward 10 years after my spinal fusion, and my lung capacity has improved. Friends and I would participate in the fun races where you dress up in costumes or get glow-in-the-dark powder thrown in your eyes. 5K's and 10K's are doable with little to no training. Suddenly running became my passion. I simply can't get enough of it. (That's where you thought this post was going. But truthfully, I don't hate it any less.)</span><br />
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<span style="font-family: "verdana" , sans-serif;">Then my life changed one day as I sat on my bed looking through a pre-written bucket list book from my friend. Skydiving, done. Hot air balloon, done. Parasailing, done. Be in a musical, done. Ref certification, done. A bunch of other random things, done. Then there it was: "run a marathon." If I was going to complete this book, I determined that I wasn't getting any younger, so this was the year. And just like that, I was signed up to run the Chicago marathon! </span><br />
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<span style="font-family: "verdana" , sans-serif;">The situation was perfect (other than the running part). I joined the Ronald McDonald House Charities team, easily raised the required $1,750 ($2,400 to be exact!), and was treated like royalty for the race. </span><br />
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<span style="font-family: "verdana" , sans-serif;">What I didn't consider, however, was the training. It was daunting after barely finishing a couple mile run to think about completing an entire marathon. There were days when I was so busy after a day of teaching and coaching and a 12-mile run waited for me. There were days when I didn't feel well, or the rain was pouring, the sun was blazing, or the wind was pushing against me. It was so hard. The day I ran the 20-miler, I began at 4am and ended up vomiting blood and almost passing out afterwards. There were several runs, short and long, that I got sick after. One dark evening, my 12-mile run outside ended with by tripping over the uneven sidewalk and scraping my hands and knees. I had 1/4 of a mile left. But I finished. </span><br />
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<span style="font-family: "verdana" , sans-serif;">There were also days when I unexpectedly met fellow RMHC runners along the way or saw some of my students in the forest preserve. Days that I felt so accomplished afterwards for a decent time or simply that I completed the run without stopping. Days when the improvement in my running almost seemed worth the effort. </span><br />
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<span style="font-family: "verdana" , sans-serif;">Then the big day came. I dreaded every second of it. It was wonderful having so much support from friends and family who came to watch, those who texted to cheer me on, and those who donated. My goal was to run at least 21 without stopping. I had done 20, so I knew I could. And if I could do 21, there was a chance I could do most or all of it. </span><br />
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<span style="font-family: "verdana" , sans-serif;">The experience was amazing. The RMHC tent was basically a party, which helped calm my fears. The people who stood along the streets cheering on complete strangers brought so much distraction and entertainment. (Some of the signs were hilarious.) The ambiance easily brought me to 9 miles and I was still feeling fantastic. Once I reached the halfway point, the run got much more difficult. Chinatown is one of my favorite places in Chicago, except when you've been running roughly 18 miles or so and the smell is completely nauseating. </span><br />
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<span style="font-family: "verdana" , sans-serif;">Unfortunately, I didn't make my goal. I felt so defeated and completely disappointed in myself. But I finished. I had to walk on and off for the last bit. Extreme pain in my feet, hips, back (and strangely, my arm??) brought tears to my eyes many times during the last stretch. When my running app told me I was around mile 18, I was discouraged to pass the 16-mile marker. But thanks to my friends along the way and the strangers who looked me in the eye and said "YOU got this! YOU can do it," I finished the 26.2. I felt so sick afterwards, but I didn't throw up this time! </span><br />
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<span style="font-family: "verdana" , sans-serif;">Do I regret it? Not a chance. I learned patience like I have never experienced before. I learned not to get ahead of myself and literally take it one step at a time. I learned that when I feel like I cannot push any farther, my body is capable of going on. I learned consistency, and getting out there when you don't want to. I learned to keep a flash light on me when it's dark outside. I learned that running makes your legs bigger. I learned not to run my 20-miler before Sunday morning church because I’ll be throwing up blood and passing out. I re-learned that running is not for me. And I learned how far an encouraging look, text, hug, or simply the presence and support of friends/family can carry you through some rough patches. </span><br />
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<span style="font-family: "verdana" , sans-serif;">Would I do it again? Never.</span><br />
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<a href="https://1.bp.blogspot.com/-f-lgn5sEILI/Xf17Ww9_KuI/AAAAAAAACTE/YafyY5B5bxABCFJyV9OV8b_rFXVIybq_wCNcBGAsYHQ/s1600/michelle%2Bmarathon.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"></a><span style="font-family: "verdana" , sans-serif;"><br /></span>Katiehttp://www.blogger.com/profile/17203510219768795587noreply@blogger.com1tag:blogger.com,1999:blog-50164848271175505.post-55847192268664012722019-06-17T20:55:00.000-04:002019-06-17T20:58:21.905-04:00The Sky's the Limit<span style="font-family: "verdana" , sans-serif;"></span><br />
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<span style="font-family: "verdana" , sans-serif;">P<span style="font-family: "verdana" , sans-serif;">ersonally, I have found a great deal of enjoyment in exploring these limits, the sky being one of them.</span></span></div>
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<span style="font-family: "verdana" , sans-serif;">June is National Scoliosis Month. So here's an obligatory "don't let your scoliosis stop you from doing what you love" post. Correction. Scoliosis really shouldn't stop you from anything, unless it's crazy severe, which is very rare. Spinal fusions, on the other hand, should stop you from a few things. But don't live in fear!</span></div>
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<span style="font-family: "verdana" , sans-serif;">I was extremely nervous weeks before the date I signed my life away. (There have been many occasions where I have found myself signing my life away, including my spinal fusion.) The tension only heightened after our scheduled jumping date was canceled due to weather. But eventually it was time. I sent texts of love to my family and tried to silence the sound of everyone's voice in my head saying, "I told you not to" if something were actually to go wrong.</span></div>
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<span style="font-family: "verdana" , sans-serif;">My friends and I geared up and loaded the plane. We traveled over 14,000 feet into the air, and I watched with terror as the instructors in front of me disappeared from the plane door. Of course, out of the three of us, I had to go first. It was definitely too late (and too expensive) to back out now.</span></div>
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<span style="font-family: "verdana" , sans-serif;">The instructor and I waddled up to the open door and I stepped out of the plane onto the black step of doom. I guess my instructor counted to three and we fell out, but it all happened so quickly that it's just a blur to me. The free-fall is the part I remember most, because it was amazing. After a second of a dropping feeling, I felt as if we were floating on air (with tons of face-numbing, cold air rushing at us). </span></div>
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<span style="font-family: "verdana" , sans-serif;"><br />People warned me that deploying the parachute would be hard on my back. I hardly remember it. Once the parachute came out, I became aware of our vast distance from the ground, so I was scared, cold, and sick of my popping ears. That part was less enjoyable for me, but the view was still so cool. </span></div>
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<a href="https://1.bp.blogspot.com/-EI-I2fwCLdQ/XQg1lAnjyBI/AAAAAAAACRM/n3_24zyWr98-4nszcvodRhdxyHHQ5OPWwCLcBGAs/s1600/skydiving%2B2.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" data-original-height="960" data-original-width="540" height="320" src="https://1.bp.blogspot.com/-EI-I2fwCLdQ/XQg1lAnjyBI/AAAAAAAACRM/n3_24zyWr98-4nszcvodRhdxyHHQ5OPWwCLcBGAs/s320/skydiving%2B2.jpg" style="cursor: move;" width="180" /></a><span style="font-family: "verdana" , sans-serif;">And then came the landing-- the part I was slightly nervous about regarding my back. My instructor told me to lift my legs straight out, and we glided smoothly into the grass. I've tripped over my own feet more forcefully than that.</span></div>
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<span style="font-family: "verdana" , sans-serif;">Seeing that I'm afraid of heights, I never imagined myself sky diving, much less after having a spinal fusion. I may not be able to do somersaults or sit-ups, but I can jump out of a perfectly good airplane. Don't let your limitations stop you from trying new and amazing things!</span></div>
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<span style="font-family: "verdana" , sans-serif;">*Disclaimer: Not all jumps are identical, so the fact that I survived mine doesn't mean I am endorsing yours. (But if you're considering, you should totally look on Groupon.)</span></div>
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</span><span style="font-family: "verdana" , sans-serif;"><br /></span>Katiehttp://www.blogger.com/profile/17203510219768795587noreply@blogger.com1tag:blogger.com,1999:blog-50164848271175505.post-32135993078610072872018-07-31T22:32:00.002-04:002018-08-10T17:36:26.116-04:00Higgy Bears: Making Scoliosis Bear-AbleMy family is a proud owner of a unique idea called a “Higgy Bear.” A few years ago my mom was doing some typical scoliosis research and found a site that sells teddy bears designed by a lady who actually had a spinal fusion herself. These are not your average teddy bears. They’re “Higgy Bears,” complete with rods sewn into their backs or back braces with custom designs. These bears are adorable. Plus, they can make the lonely journey of bracing and surgery a little less lonely, when you’ve got someone (or something) going through it with you! So, being the lover of all things creative and kid-friendly, my mom bought a Higgy Bear with rods inside, as well as a back brace for one of our Generation Dolls. It was a tie-dye one, just like one I had.<br />
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These bears are cute and creative, for sure, but to me, it’s the heart behind the Bear that’s inspiring. Here is someone who took her past pain to make a difference— to impact people in a positive way from a negative situation. These are the kinds of people who make this world a better place— those who are always thinking of others first. No one wants to go through the ups and downs of life alone. So get yourself, or someone else, a Higgy Bear to “make scoliosis bear-able.”<br />
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Visit their <a href="https://www.etsy.com/shop/HiggyBears" target="_blank">website</a>!Katiehttp://www.blogger.com/profile/17203510219768795587noreply@blogger.com2tag:blogger.com,1999:blog-50164848271175505.post-19933344417147407562018-07-22T13:18:00.001-04:002018-07-22T13:18:44.130-04:00The Secret of Scoliosis<span style="font-family: Verdana, sans-serif;">Scoliosis is not cancer.<br />Scoliosis is not ALS.<br />Scoliosis is not a brain tumor. </span><br /><div>
<span style="font-family: Verdana, sans-serif;">Scoliosis is not diabetes.</span></div>
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<span style="font-family: Verdana, sans-serif;">Scoliosis is not autism.</span></div>
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<span style="font-family: Verdana, sans-serif;">Scoliosis is scoliosis.</span></div>
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<span style="font-family: Verdana, sans-serif;">There are horrible diseases that deserve awareness, research, funding, and a cure. Diseases that take lives of so many precious people. So why do I care so much about scoliosis?</span></div>
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<span style="font-family: Verdana, sans-serif;">Scoliosis can actually be life-threatening in extreme cases. However, most people experience scoliosis from a mild to severe spectrum. Scoliosis affects thousands of people. It affects your health, confidence, physical abilities, emotions, appearance, and so much more. </span></div>
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<span style="font-family: Verdana, sans-serif;">Scoliosis should NOT be a secret. How is something so common so unheard of to many people? This is why my blog exists. This is why I made a YouTube video, a FaceBook page, host benefit concerts every year, and correspond with other scoliosis patients. The world needs to know about scoliosis.</span></div>
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<span style="font-family: Verdana, sans-serif;">This is why I am asking you, my friends I know, and friends I've never met, to nominate me for the WEGO Health Patient Leader award.</span></div>
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<span style="font-family: Verdana, sans-serif;"><script src="https://badges.wegohealth.com/ha-awards-2018.js?referrer=12_XM6ymFEyp8B2Vk-Mvfw" type="text/javascript"></script></span></div>
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<span style="font-family: Verdana, sans-serif;">Spread the word, stop the curve.</span></div>
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<span style="font-family: Verdana, sans-serif;">Scoliosis is no secret.</span></div>
Katiehttp://www.blogger.com/profile/17203510219768795587noreply@blogger.com0tag:blogger.com,1999:blog-50164848271175505.post-60718221756474661832018-04-12T10:01:00.003-04:002018-04-12T10:02:43.776-04:00When Scars Fade<div style="margin: 0px 0px 10.66px;">
<span style="font-family: "verdana" , sans-serif;">Time has a way of healing things. No matter what hardships
we’ve endured, in time we tend to forget what some of the pain was like. Nothing
will ever take these scars away. They’re here for good. And yet we still
forget.</span></div>
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<span style="font-family: "verdana" , sans-serif;">My back surgery was by far the most physically painful thing
I’ve been through. Occasionally, I will wake up after a nightmare about having
another back surgery. And then it’s as if all the memories and feelings flood
back to my mind. I begin remembering the pain I felt, the emotions, the
surroundings, the smells of the hospital, and the people there with me.
Sometimes I’ll push myself too hard playing volleyball or trying to pick
something up, and the smallest amount of pain sends me back to those moments of
what it felt like almost 9 years ago. It all comes back.</span></div>
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<span style="font-family: "verdana" , sans-serif;">And yet I live most of everyday not giving a thought to any
of that. Because I’m in denial? No. Because my back is fixed and perfect now?
Mostly definitely no. Because life moves on, whether you’re ready or not.</span></div>
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<a href="https://lh3.googleusercontent.com/-e26m1OOi4_Y/TX1TxXDIHxI/AAAAAAAAAHc/ZkT2WojnrXk/s1600/scar.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" class="CSS_LIGHTBOX_SCALED_IMAGE_IMG" height="320" src="https://lh3.googleusercontent.com/-e26m1OOi4_Y/TX1TxXDIHxI/AAAAAAAAAHc/ZkT2WojnrXk/s320/scar.jpg" width="240" /></a><span style="font-family: "verdana" , sans-serif;">I’ve been reminded of this as I’ve seen my family and
friends go through heartache this year. I was reminded last night when talking
with a high school girl who was sobbing over a very difficult situation she was
experiencing. And then later I heard her joyful laughter. Was everything ok
then? No, but life moves on. And so we have to. </span></div>
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<span style="font-family: "verdana" , sans-serif;">Scars are fascinating to me. Not only do they look cool, but
they typically have awesome (or sometimes hilarious) stories behind them. A lot
of people ask me if I try to hide my scar or make it less noticeable with
medicine. My response? No way! I worked hard for this. I’m very proud of my
18-inch scar. </span></div>
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<span style="font-family: "verdana" , sans-serif;">Scars are not a reminder of what you’ve been through (although
it certainly is that) as much as it is a reminder of who you are now<i style="mso-bidi-font-style: normal;"> because</i> of what you’ve been through.
Every problem God gives us in life makes us a different person. It changes our perspective a
little bit at a time. Our character grows through hardships if we allow God to work. </span></div>
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<span style="clear: left; float: left; font-family: "verdana" , sans-serif; margin-bottom: 1em; margin-right: 1em;"><a href="http://1.bp.blogspot.com/-iz63Mwz7c0M/TVtSPL0berI/AAAAAAAAAE8/_4J1cnFs2So/s1600/scar+2.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" class="CSS_LIGHTBOX_SCALED_IMAGE_IMG" height="200" src="https://1.bp.blogspot.com/-iz63Mwz7c0M/TVtSPL0berI/AAAAAAAAAE8/_4J1cnFs2So/s200/scar+2.jpg" width="150" /></a>As of last August, my friends and I have raised almost
$6,000 for the Ronald McDonald House Charities. Before my surgery, I didn’t even
know what that organization was, much less cared to help it. I became
passionate about it. But after a while, I wondered if all the stress of putting
on these benefit concerts was worth it. I was forgetting what I had been
through and how I had been changed. </span></div>
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<span style="font-family: "verdana" , sans-serif;">Even scars fade. That permanent proof of victory becomes
less visible, and therefore less memorable. We shouldn’t live in the past,
stuck where we used to be, enduring those trials all over again. Let’s remember
how far we’ve come and how we can keep growing and shining as our scars
disappear. </span></div>
Katiehttp://www.blogger.com/profile/17203510219768795587noreply@blogger.com2tag:blogger.com,1999:blog-50164848271175505.post-89016730819205309152017-06-18T15:41:00.000-04:002017-06-18T15:41:22.533-04:00Does Scoliosis Matter?<span style="font-family: Verdana, sans-serif;">Of course scoliosis matters. Right? I mean, it has affected my life in so many ways since I was 6 years old. Doctors appointments and x-rays every 3-6 months, braces 23 hours a day for six years, a huge surgery with a long recovery, and now permanent rods and screws with no more slouching for the rest of my life. I would say it matters a lot. </span><br />
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<span style="font-family: Verdana;">But does it really matter?</span><br />
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<span style="font-family: Verdana;">I used to believe it did, so much that I devoted myself to blogging, emailing, participating in webinars, interviews, and even incorporated scoliosis into my master's thesis. Every year I organize a benefit concert, and my friends and I have raised a couple thousand dollars for the Ronald McDonald House Charities that helped us during my surgery. </span><br />
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<a href="https://1.bp.blogspot.com/-QsK-DL_jhxQ/WUbV1b6O7PI/AAAAAAAABfE/t8aFe-rzk6sz31xctDCaNlVmxCW-XBPvQCLcBGAs/s1600/IMG_5112.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="640" data-original-width="480" height="320" src="https://1.bp.blogspot.com/-QsK-DL_jhxQ/WUbV1b6O7PI/AAAAAAAABfE/t8aFe-rzk6sz31xctDCaNlVmxCW-XBPvQCLcBGAs/s320/IMG_5112.JPG" width="240" /></a></div>
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<span style="font-family: Verdana;">So what has changed?</span><br />
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<span style="font-family: Verdana;">The longer I live, the harder life gets. And my life has not necessarily been an easy ride, although I wouldn't change any of it. You build relationships, and then get hurt. You love people, and then lose them. But that's a part of life-- a part that reminds us that there is more than this life right here and now. I have a friend who passed away from ALS. My grandma lived with diabetes, kidney failure, and many other health issues, and last year she went home to be with God. And then a couple months later, a high school student at my school and church was diagnosed with leukemia, but the battle ended only a few short days after. </span><br />
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<span style="font-family: Verdana;">Seeing all the loss and heartache around me makes me wonder why I would devote myself to helping those with scoliosis when there are life-threatening diseases that I could help fight against. Living with a crooked spine or rods and screws seems so trivial now.</span><br />
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<span style="font-family: Verdana;">And so I stopped. I stopped thinking about scoliosis, about getting involved and helping people, just so I could think about what I wanted to accomplish in my short life.</span><br />
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<span style="font-family: Verdana;">My decision? It may change. It may grow. I may completely throw it out the window. But for now, I have decided that I actually have no control. In the end, it doesn't really matter what I do. The fact is, people still die. People still suffer. We all have our own experiences, and I am not called to be the hero. I do believe that God purposefully gave me scoliosis, because He knew I needed it, AND because I would do something about it. </span><br />
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<span style="font-family: Verdana;">Lately, I've come across so many people with new scoliosis diagnoses. No, it's not cancer. It's not immediately life-threatening. But it is scary. It's unknown. It's painful. It's emotional. It's a path not traveled yet. And these people need someone who's been there. And that's what I've been called to do. </span><br />
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<span style="font-family: Verdana;">I can't save lives... (except when I donate blood. And then I save 3. LOL) But it's the quality of life that I can have an impact on. That's why I have decided to continue my efforts to help those with scoliosis. That's why I will keep putting on these benefit concerts for RMCH. I want to give both children and adults the opportunity to be together during times of hardship and trauma. </span><br />
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<a href="https://4.bp.blogspot.com/-yeeQ0InyP4o/WUbWPTNBKZI/AAAAAAAABfI/VhUL2sYe4gA30UkQmP0ZoFUrlg6wvYs2wCLcBGAs/s1600/IMG_5107.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" data-original-height="640" data-original-width="480" height="320" src="https://4.bp.blogspot.com/-yeeQ0InyP4o/WUbWPTNBKZI/AAAAAAAABfI/VhUL2sYe4gA30UkQmP0ZoFUrlg6wvYs2wCLcBGAs/s320/IMG_5107.JPG" width="240" /></a></div>
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<span style="font-family: Verdana;">But even that doesn't ultimately matter. When your life is over, good or bad, pleasant or painful, it's over. You can't change it. The choices made here and now affect where we spend eternity after death. And this is what truly matters. I am going to keep using scoliosis as a way of sharing the Truth with those around me. Eternal life matters. And you can only have it through Jesus Christ. </span><br />
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<span style="font-family: Verdana;">So... does scoliosis matter? To me, <em>yes.</em> I consider it a gift from God (although a painful, annoying one!) that I can use to help show others the way to eternal life with Him. And THAT matters most!</span>Katiehttp://www.blogger.com/profile/17203510219768795587noreply@blogger.com0tag:blogger.com,1999:blog-50164848271175505.post-35506053698636121282016-06-30T00:21:00.003-04:002016-06-30T00:27:23.121-04:00Scoliosis Defines Me<span style="font-family: "verdana" , sans-serif;">"Scoliosis does not define me." If you've read many scoliosis stories, you've seen this statement a million times. In today's culture, there are two popular responses to physical trials in life. One of those reactions is that you want to fit in and be as normal as possible, so you don't talk about your physical problems and deal with the effects inwardly. On the other end of the spectrum, you want to be the overcomer and boldly face new challenges simply for the sake of showing people and proving to yourself that this isn't going to stop you. And I've been on both sides of the fence. In fact, I frequently jump from one side to the other.</span><br />
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<span style="font-family: "verdana";">So does scoliosis define me? I love etymology. Don't be weirded out when I say that I looked up the definition of "define." It comes from the French word meaning "to put an end to" and the Latin, "to limit," but let's think about the context we use it in. (It's also popular now days to play devil's advocate and write a controversial blog post!) Here is one interesting definition: "to describe the nature, properties, or essential qualities of." </span><br />
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<span style="font-family: "verdana";">Let's think about physical properties. One of the first things people notice about me is my posture. Reason? Scoliosis. I can't wear a lot of clothing because of the way it fits. Reason? Scoliosis. I can't bend my back. Reason? Scoliosis. And that crazy 18-inch scar down my back. Reason? Scoliosis. I have compassion for people going through surgeries. Reason? Scoliosis. The list could go on forever, but I think you get the idea.</span><br />
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<span style="font-family: "verdana";">The truth is, without having this odd deformity of the spine, my life would be different. My character might be different because I wouldn't have had to push through some physically and emotionally traumatic times. I wouldn't have ever begun my benefit concerts for charity if I hadn't been forced to be on the receiving end of it. I wouldn't have been able to help hundreds of people that I have met through my blog and video. </span><br />
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<span style="font-family: "verdana";">No, scoliosis does not define me in the sense that I allow it to limit me. But yes, scoliosis definitely defines me. My life is never going to be the same, whether I like to believe that at times or not. But I know a loving, wise God who knew it was best to create me with scoliosis. Ultimately, He defines me. And I will use whatever He places in my life-- even scoliosis-- to make Him known.</span><br />
<br />Katiehttp://www.blogger.com/profile/17203510219768795587noreply@blogger.com4tag:blogger.com,1999:blog-50164848271175505.post-15046633333514347832016-01-03T16:28:00.001-05:002016-01-03T16:28:26.699-05:00#straightbackproblems<span style="font-family: Verdana, sans-serif;">If you've had a spinal fusion, you may have found yourself in at least one of these situations. </span><br />
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<span style="font-family: Verdana;">1. First impressions: people always assume you are a snob, gymnast, or pianist because of your impeccable posture.</span></div>
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<span style="font-family: Verdana;">2. Either pull a muscle in your neck or mess up your hair trying to get in and out of the car. </span></div>
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<span style="font-family: Verdana;">3. During a play, concert, etc., you hear the people behind you discuss the fact that they can't see. </span></div>
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<span style="font-family: Verdana;">4. Getting a drink from the fountain: a) Do a fancy squatting yoga-like pose, b) bend forward and let the world deal with the sight, or c) don't get a drink at all.</span></div>
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<span style="font-family: Verdana;">5. Fall over several times before getting your socks or shoes on.</span></div>
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<span style="font-family: Verdana;">6. Sitting in chairs either leaning way back behind everyone else or completely sitting forward with your body away from the back of the chair. </span></div>
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<span style="font-family: Verdana;">7. Like number 6, but then you look down the row and everyone is three feet shorter than you because they are slouching into the backs of their chairs.</span></div>
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<span style="font-family: Verdana;">8. The head rest in your car is digging into your shoulder blades (for tall people with straight backs!).</span></div>
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<span style="font-family: Verdana;">9. In a class setting the teacher has the class do the rag doll exercise and you awkwardly try to fit in without people looking at you.</span></div>
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<span style="font-family: Verdana;">10. No more somersaults. (Trust me, don't try this at home.)</span></div>
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<span style="font-family: Verdana;">These are just a few of the awkward situations you might find yourself in after having rods screwed into your spine. Frustrating? Once in a while. Stick a hash tag in front, because you just have to laugh about it!</span></div>
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<span style="font-family: Verdana;">#gotrods?</span></div>
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<br />Katiehttp://www.blogger.com/profile/17203510219768795587noreply@blogger.com4tag:blogger.com,1999:blog-50164848271175505.post-70757362438365291212015-10-11T23:10:00.000-04:002015-10-11T23:19:41.440-04:00Curved on Purpose<span style="font-family: Verdana, sans-serif;">Anyone who has had a spinal fusion has probably wondered at some point (if not many times), "Was it really worth it?" </span><br />
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<span style="font-family: Verdana;">I occasionally ask myself the same question, typically in short moments of frustration. These are times when I play volleyball and wish I could play like I used to, when I don't like the way certain clothing looks on me because my back is so straight and stiff, when it hurts because of the rain, when I try to bend over to pick something up and it's difficult, or I lose my balance, or I feel like I look awkward. When it comes down to it, I am too focused on myself. But still, I wonder what my life would be like if I hadn't had 18-inch rods screwed into my spine. Would my scoliosis have gotten worse and caused problems? Would I have lived life normally and never experienced any issues? Then I yank myself out of the world of "what if's" and think about the reasons why scoliosis has been one of God's gracious gifts to me.</span><br />
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<strong><span style="color: #e69138; font-family: Verdana;"><u>My Job</u></span></strong><br />
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<span style="color: black; font-family: Verdana;">It's funny for me to think that I'm a teacher, because growing up, that was one of the last things I wanted to do. I didn't even enjoy being with kids. I would much rather be with older adults. While lying in bed one night recovering from my surgery, I couldn't sleep. So I thought about school, and how all my friends had graduated. It was boring, and I didn't enjoy it as much as I used to. My friends and I didn't have much to talk about at lunch each day. Then I thought about everything that I had to be thankful for-- my spine is crooked, but I'm not crippled. I may not ever play volleyball again, but I can walk. I may be in pain, but it will heal. Before Christ died, He suffered pain that could never be compared to the small amount I was experiencing. Why? Certainly not for Himself. He is perfect. He did it because we are sinful and need a Savior. And this thought gave me something to hope in. </span><br />
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<span style="color: black; font-family: Verdana;">I went back to school with renewed excitement after seeing how good God truly is. My friends and I started prayer groups and Bible studies. I began eating lunch and hanging out with younger students, and found that I actually enjoyed getting to know them and hopefully impacting them in some way. I knew teaching was what I wanted to do. God put my good, but self-consumed desires of volleyball and music competitions on hold and got me flat on my back for a while so I would just stop and realize what was truly important in life. And there has never been a day of my life that I have regretted choosing a profession that allows me to have an impact on young kids every day. </span><br />
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<span style="color: #e69138; font-family: Verdana;"><strong><u>Graduate School</u></strong></span><br />
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<span style="color: black; font-family: Verdana;">Because of my competitive, goal-oriented, school-loving nature, I always knew grad school was something I wanted to pursue. The idea of writing a master's thesis was the only thing that really worried me-- and finances, but that's beside the point. I strongly dislike writing and research, but I viewed it as just another obstacle to be tackled. </span><br />
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<span style="color: black; font-family: Verdana;">Then my scoliosis came to the rescue. We had to come up with a current problem in music education. I remembered the difficulties I had playing the clarinet while wearing a back brace. It's true that teachers will do their best to make accommodations for students with needs. We see it all the time. Students in wheelchairs receive special plans so they can participate in the same activities as others. Teachers make larger font size for students with severe vision loss and make visuals for students with hearing loss. But what about students with needs that aren't as obvious? To me, wearing a back brace was obvious. It was difficult to breathe. In fact, it was impossible to breathe correctly, because I could only take shallow chest-breaths. But my teachers didn't know this. And so this July I submitted my 61-page master's thesis: <em>Accommodations for the Effects of Physical Disorders on the Breathing Process While Singing or Playing a Wind Instrument.</em> In the process I got to go back to the same Shriners Hospitals for Children where I had my surgery and take a breathing test and interview a respiratory therapist. I saw how my breathing had improved compared to my pre-surgery breathing tests. I got to go back to my brace doctor from 5th-11th grade and interview him, as well. And in the end, after several presentations, I have raised awareness and contributed a drop in the ocean of music education, all because God saw fit 23 years ago to create me with scoliosis. </span><br />
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<span style="color: #e69138; font-family: Verdana;"><strong><u>My Opportunities</u></strong></span><br />
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<span style="color: black; font-family: Verdana;">Because of my scoliosis, God gave me a new appreciation for the things I so often take for granted. I realized that others go through trials that are much more difficult than the ones I experience. I found that I love helping hurting people. I began organizing and performing in benefit concerts to raise money and awareness for the <a href="http://www.rmhc.org/" target="_blank"><span style="color: #e69138;">Ronald McDonald House Charities</span></a>, since that is where my parents stayed during the week at the hospital. So far, we have raised over $3,000. (This also happens to look good on a resume, and without having scoliosis, I never would have thought to begin these concerts!) I enjoy blogging about my journey with scoliosis. It has given me some incredible opportunities to meet people I would have never known. I have been able to visit one girl the night before her surgery, go to lunch with another girl, respond to hundreds of emails, and help scoliosis patients and their families through uncertain times that I have already been through. I have started my own Chicago chapter of the <a href="http://www.globalscoliosis.com/my-scoliosis-story/meet-katie-v-from-chicago-illinois-who-shares-her-scoliosis-story/" target="_blank"><span style="color: #e69138;">Global Scoliosis Foundation</span></a>.</span><br />
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<span style="font-family: Verdana;">Is it difficult to live on the other side of a spinal fusion? Yes. Was it worth it? Absolutely. It was no accident that I was born with scoliosis. Only a good, all-knowing, loving God would care enough about my life to create me the way He did. I am curved on purpose.</span>Katiehttp://www.blogger.com/profile/17203510219768795587noreply@blogger.com0tag:blogger.com,1999:blog-50164848271175505.post-50299579025522137542015-06-03T23:22:00.000-04:002015-06-04T23:40:17.057-04:00One Step at a Time<span style="font-family: Verdana, sans-serif;">Four 5k's and a 10k in one year. Not bad... for someone who doesn't even really like running. </span><br />
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<span style="font-family: Verdana;">So let me answer your question before you ask it: "Why on earth would you pay money to run when you don't even like it?"</span><br />
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<span style="font-family: Verdana;">Good question. And here are my reasons:</span><br />
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<span style="font-family: Verdana;">1. Most obviously, running is good for you, blah blah blah. Ok. Moving on.</span><br />
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<span style="font-family: Verdana;">2. Most importantly to me, running is one huge evidence of a successful spinal fusion. Before my surgery, I couldn't even run a whole mile. My spine was compressing my lungs, which made breathing while running very difficult. After surgery my breathing improved, and so did my running. It took lots of running to work up to a 5k, and even more for the 10k. But every mile that I run is a reminder of the blessing it is to be able to run. Some people are stuck in wheelchairs for the rest of their lives. Some are too sick to run. If my scoliosis hadn't been treated, maybe I wouldn't even be able to walk, much less run. But I have the ability, so I do.</span><span style="font-family: Verdana;"><span id="goog_1652786227"><br /></span></span><br />
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<span style="font-family: Verdana;">3. Running is hard. I love to choose the hard task. I don't always love doing it, but I love the feeling when it's accomplished. Running does not come easy for me like it does for most of my friends. In fact, I thought I was going to throw up after my last 5k. But I had set my mind on running the entire thing. My spine is still not completely straight, so I will never have full lung function. So I'm glad running is difficult. It gives me an opportunity to take a challenge. Anyone can do the easy thing. And "easy" or "hard" is different for every person. But I will never become better-- at what I do, or just as a person in general-- if I don't stretch myself and choose the hard.</span><br />
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<span style="font-family: Verdana;">4. Running is fun. I still don't love it. But it can be fun! There are so many types of 5k's and 10k's that make it enjoyable, especially to do with friends. So why not make the hard task fun?</span><br />
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<span style="font-family: Verdana;">I strongly believe that if I had not experienced a spinal fusion, I probably would not have found an outlet in running. But who knows? I do know that God has given me the ability (not necessarily talent, but the ability!) to run, and I don't want to waste it. Every mile-- one step at a time-- is a reminder of God's grace in my life.</span><br />
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<span style="font-family: Verdana, sans-serif;"><br /></span>Katiehttp://www.blogger.com/profile/17203510219768795587noreply@blogger.com2tag:blogger.com,1999:blog-50164848271175505.post-63758726442294898502014-11-17T22:56:00.001-05:002014-11-17T23:03:18.904-05:005 Years<span style="font-family: Verdana, sans-serif;">5 years. It feels like yesterday, but it feels like a dream. </span><br />
<span style="font-family: Verdana;"><br /></span><span style="font-family: Verdana;">I remember those years in high school, lying in bed, thinking about the day when<span style="font-family: Times New Roman;"> I<span style="font-family: Verdana, sans-serif;"> <span style="font-family: Verdana, sans-serif;">would take my brace off for the last time. I would wear clothes that fit, tie my shoes without breaking something, and BREATHE AGAIN. After wearing a brace for 6 years, you get used to it. But I still wished it would come faster than anything else. </span></span></span></span><br />
<span style="font-family: Verdana;"><br /></span><span style="font-family: Verdana;">And then I would wonder what it would be like to need a spinal fusion. What would it feel like? And the surgery experience? Would I ever regret doing something like that? If I did, there would be no turning back. You can't take the rods out. I thought about all these things. But it didn't matter. It would never happen to me.</span><br />
<span style="font-family: Verdana;"><br /></span><span style="font-family: Verdana;">5 years ago, I woke up as I was being lifted and set down on the x-ray table. That was the beginning of a long, difficult recovery. But this recovery was a life-changing one for me. It was so painful to do the things that I had never thought twice about, like brushing my teeth, sitting up, rolling over, writing, coughing, sneezing, moving my arms, and the list could go on forever. </span><br />
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<span style="font-family: Verdana;">And I was right. There was no turning back. And if I had the choice, I wouldn't. My nurses said this is one of the hardest surgeries you could experience. And I would still choose the surgery. I have a new perspective on life that I would have never possessed on my own. Hundreds of people have come to me in times of need, and I have had countless opportunities to come by their side during these hard times. My friends and I have raised $2,700 for the same charities that helped my family during my surgery. </span></div>
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<span style="font-family: Verdana;">It has been worth every second of it-- even the nights that I couldn't sleep because of the pain... the days I cried because it hurt so much... the frustration of being so dependent on other people, when I should be playing volleyball or ice skating with my friends.
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<a href="http://4.bp.blogspot.com/-v6Yg-n_pPKQ/VGq-Wie6wkI/AAAAAAAABGM/rua40lFmFJs/s1600/hospital.jpg" imageanchor="1" style="clear: left; cssfloat: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" closure_lm_347881="null" src="http://4.bp.blogspot.com/-v6Yg-n_pPKQ/VGq-Wie6wkI/AAAAAAAABGM/rua40lFmFJs/s1600/hospital.jpg" eta="true" height="320" width="240" /></a><span style="font-family: Verdana;">How can I say it was worth it, then? That's the thing. I have no answer, except this: God is good. He knew this would be best for me. In fact, He knew it when He created me with that small curvature in my spine. He knew it when I stood in my closet frustrated to tears because nothing looked normal over my brace. He knew it as I lay on the operating table, with an 18 inch incision, and two rods and 18 screws were being drilled into my spine. He knew it as I lay in the hospital bed, unable to move, and hardly able to speak. And He knew it as I type this blog post, reaching those I've never even met. God is good. Only a good God would allow me to go through hard times in order to change me for the better. And I want to show the world that He is truly good. My only hope is that those who have never experienced His goodness will come to Him.</span></div>
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<a href="http://4.bp.blogspot.com/-H-naTBs1MkU/VGq_eS9gLkI/AAAAAAAABGY/ySdFkxlFc0k/s1600/Cathy.png" imageanchor="1" style="clear: right; cssfloat: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" closure_lm_347881="null" src="http://4.bp.blogspot.com/-H-naTBs1MkU/VGq_eS9gLkI/AAAAAAAABGY/ySdFkxlFc0k/s1600/Cathy.png" eta="true" height="320" width="232" /></a><span style="font-family: Verdana;">5 years later, I now stand tall, partially because I have no other choice, but mostly because I am so blessed. Many people live the rest of their lives with emotional scars-- as if the physical one wasn't enough! Memories flood into my mind during this week every year, but memories of thankfulness. I hope I never get used to the fact that God is so good.</span></div>
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Katiehttp://www.blogger.com/profile/17203510219768795587noreply@blogger.com2tag:blogger.com,1999:blog-50164848271175505.post-56784352714083560352014-11-06T22:07:00.000-05:002014-11-06T22:07:08.520-05:00Global Scoliosis Foundation of Chicago<span style="font-family: Verdana, sans-serif;">This June, I crossed off yet another item off the bucket list: start a scoliosis chapter. As president of this chapter in Chicago, I must hold four main events a year. These events can include fundraisers (my favorite!), educational meetings, social gatherings, etc.</span><br />
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<span style="font-family: Verdana;">Our first event was a fundraiser for the Ronald McDonald House Charities. A concert featuring movie theme songs and "familiar favorites" raised $865! Coming soon will be a Christmas concert!</span><br />
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<span style="font-family: Verdana;">If you are interested in following our latest efforts to spread awareness, encourage those with spinal deformities, or raise money for incredible charities, you can like my FaceBook page <a href="https://www.facebook.com/pages/Scoliosis-Foundation-of-Chicago/819781358033131?ref=bookmarks" target="_blank">HERE.</a></span><br />
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Katiehttp://www.blogger.com/profile/17203510219768795587noreply@blogger.com0tag:blogger.com,1999:blog-50164848271175505.post-7333589993120210022014-05-31T21:29:00.000-04:002014-06-02T21:31:24.997-04:00Own Your Strong<span style="font-family: Verdana, sans-serif;">And we did. That's the motto of Mudderella, a 6.2 mile run with 12 obstacle courses in the mud. </span><br />
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<span style="font-family: Verdana;">What would possess someone with two titanium rods and 18 screws to participate in a mud run? Ummm... because it's fun? Before my surgery, I couldn't even run one mile. My spine was pushing on my lungs, and it was too difficult to breathe. Now four years post-op, I've not only been able to run one mile without stopping, but four. So, naturally, it was time to give myself a challenge. I love setting goals and proving to myself that my spinal fusion can't limit me in everything. No, I will never physically be able to bend again, do a somersault, do crunches, or any of those things, and that is exactly why I love to challenge myself in other areas. (And no, Mom, my goal really isn't to see how much I can stress you out.) :)</span><br />
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<span style="font-family: Verdana;">Now I'm crazy sore, but also feeling very accomplished. What are you challenging yourself to become better at?</span><br />
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<span style="font-family: Verdana;">Disclaimer: Be sure to ask your doctor what is ok to do. Everyone is different! :)</span><br />
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Katiehttp://www.blogger.com/profile/17203510219768795587noreply@blogger.com7tag:blogger.com,1999:blog-50164848271175505.post-44767432498293058002014-01-01T11:42:00.001-05:002014-01-01T11:56:09.089-05:00Getting Better Every Day<span style="font-family: Verdana, sans-serif;">When recovering from a spinal fusion, every day is a step of progress from the one before. But now that I'm 4 years post-op, this phrase takes on a new meaning.</span><br />
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<span style="font-family: Verdana;">During this new year of 2014, I'm taking the challenge of our school's music faculty phrase, "getting better every day." I want to take active steps to keep improving physically, mentally, musically, and so many other areas. </span><br />
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<span style="font-family: Verdana;">Reflecting on this past year, here are some of the biggest things God has accomplished in my life:</span><br />
<span style="font-family: Verdana;">1. Got to meet a girl who contacted me through my blog.</span><br />
<span style="font-family: Verdana;">2. Survived student teaching! :)</span><br />
<span style="font-family: Verdana;">3. Raised about $600 by hosting a fundraising concert for Ronald McDonald House Charities. </span><br />
<span style="font-family: Verdana;">4. Graduated from college with a degree in Music Education.</span><br />
<span style="font-family: Verdana;">5. Spent all summer counseling at a camp in North Carolina (which included some very rigorous activities for having two rods in your back!).</span><br />
<span style="font-family: Verdana;">6. Got a job teaching music and coaching volleyball and cheerleading-- and loving it!</span><br />
<span style="font-family: Verdana;">7. Went with our school's band/choir to play/sing Christmas music at Shriners Hospitals for Children (the same one where I had surgery!).</span><br />
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<span style="font-family: Verdana;">And here are some of my scoliosis-related New Year's resolutions for 2014:</span><br />
<span style="font-family: Verdana;">1. Start a scoliosis support chapter this summer in the Chicago area. </span><br />
<span style="font-family: Verdana;">2. Host my third fundraising concert for Ronald McDonald House Charities.</span><br />
<span style="font-family: Verdana;">3. Host a fundraising volleyball tournament at my school for Shriners Hospitals for Children.</span><br />
<span style="font-family: Verdana;">4. Update my YouTube video so others can see what things are like 4 years after surgery.</span><br />
<span style="font-family: Verdana;">5. And any other schemes I come up with as the year goes on!</span><br />
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<span style="font-family: Verdana;">So what are YOU going to do with the time God has given us? We don't have long, so take some active steps to make a difference-- no matter how small!</span><br />
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<span style="font-size: x-small;"> <span style="font-family: Verdana, sans-serif;">College graduation</span></span><br />
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<span style="font-family: Verdana, sans-serif; font-size: x-small;"> 2013 RMHC fundraising concert</span><br />
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<span style="font-family: Verdana, sans-serif; font-size: x-small;">Met Laura, who was having a spinal fusion the next day in SC</span><br />
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<span style="font-family: Verdana, sans-serif; font-size: x-small;">SCS trip to Shriners Hospitals for Children</span><br />
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<span style="font-family: Verdana, sans-serif;"> <span style="font-size: x-small;">Counseling at The Wilds</span></span><br />
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<span style="font-size: x-small;"> <span style="font-family: Verdana, sans-serif;">Playing games in the mud at The Wilds</span></span><br />
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<span style="font-family: Verdana, sans-serif; font-size: x-small;">Going tubing at The Wilds</span><br />
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<span style="font-family: Verdana, sans-serif; font-size: x-small;">Playing paintball at The Wilds</span><br />
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<span style="font-family: Verdana, sans-serif; font-size: x-small;">Hiking to the falls at The Wilds</span></div>
Katiehttp://www.blogger.com/profile/17203510219768795587noreply@blogger.com0tag:blogger.com,1999:blog-50164848271175505.post-57188710649278698102013-12-15T17:02:00.001-05:002013-12-15T17:07:17.014-05:00Sweet Reunion<span style="font-family: Verdana, sans-serif;">I never knew one place could bring so many mixed emotions. Shriners Hospitals for Children is packed with emotions for me-- so I found out this past week.</span><br />
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<span style="font-family: Verdana;">After graduating from college this May, I am now teaching 3rd-4th grade music, private piano and flute lessons, and coaching volleyball. The directors of the band/choir do as much as they can to get the students out to play/sing for people in the community. So, naturally, I suggested going to Shriners Hospitals for Children! And that's what we did. </span><br />
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<span style="font-family: Verdana;">It was so good to be back again-- for once, not a patient! During college, I took groups to the Shriners in Greenville, SC. But this time was different. We were at the exact hospital where I had my surgery-- Shriners in Chicago. While running around trying to direct everyone to the right area, get music stands and instruments, etc., I didn't have time to think about anything else. Then we got to the elevator. The nurses were rolling a teenage boy on a hospital bed, either on his way to surgery, or just getting out. He was in a hospital gown with a cast on his leg and cloths over his eyes. I suddenly felt all the memories rush back. Thankfully, I didn't have time to dwell on it, because I probably would've passed out. :)</span><br />
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<span style="font-family: Verdana;">While the band played and the choir sang, the rest of us met the patients who were there listening, along with their family members. We heard some pretty incredible stories. One boy was in a football accident. They told him he would never walk again. I couldn't see from where I was sitting, but I assumed he was in a wheelchair. Then when we got up to leave, he jumped up from his chair and started walking!</span><br />
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<span style="font-family: Verdana;">I went to the Gait Lab, where I have annual testing to see any improvements or changes in my flexibility and balance. I was disappointed to find out that one of the workers had moved, but I got to talk with another one who remembered my name. They have been working on my data for years now, and he said it's always nice to see the patient whose name they've been seeing for a long time now.</span><br />
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<span style="font-family: Verdana, sans-serif;">I was also able to see my favorite nurse! She was there through the whole process-- appointments before surgery, the week of my surgery, and every post-op appointment afterwards. She is an excellent nurse, and I love seeing her every time I come!</span><br />
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<span style="font-family: Verdana, sans-serif;">And lastly, I got to see one of my nurses from ICU. I don't remember much of her, because I was so heavily medicated. But I do remember that she was crazy and really helped me take my mind off the pain. I asked someone if they knew her, and they said there were so many nurses with her name. But then we said that she was really crazy, and they knew immediately, and went to find her! </span><br />
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<span style="font-family: Verdana, sans-serif;">It was definitely good to see my friends again-- people who daily give their time to help kids in need like I was. So many emotions. Gratefulness, for what they've done for me, and that I'm no longer there! Sadness, because others are there experiencing physical trials, and because I miss my friends there! And excitement, because I have been given a new future with new passions and perspective. God is so good.</span><br />
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<span style="font-family: Verdana;">Thanks to the directors/students of Schaumburg Christian School who put in the work and time to spread some Christmas cheer with kids who needed encouragement. Speaking from experience, I know it was a huge encouragement!</span>Katiehttp://www.blogger.com/profile/17203510219768795587noreply@blogger.com4tag:blogger.com,1999:blog-50164848271175505.post-35068249464329293042013-11-17T00:18:00.000-05:002013-11-19T00:34:52.717-05:00Happy National Spinal Fusion Awareness Day!<span style="font-family: Verdana, sans-serif;">Which is what I officially dubbed today, November 17. </span><br />
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<span style="font-family: Verdana, sans-serif;">It was four years ago today. Big whoop. So I had back surgery. Lots of people do. It's not like I'm dying of cancer or anything. And it's not even a nice, round number, like 5. Then why am I so excited about today? </span><br />
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<span style="font-family: Verdana;">Glad you asked.</span><br />
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<span style="font-family: Verdana;">This wasn't just any surgery for me. I have lived with scoliosis my entire life. I had grown used to my twisted body and the way I felt and looked. Then suddenly it was all about to change.</span><br />
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<span style="font-family: Verdana;">I was told my volleyball days would be over. That alone was enough to make me rethink my priorities. Many of my plans were either put on hold or completely wiped out.</span><br />
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<span style="font-family: Verdana;">Then there was the surgery itself-- risks of paralysis (and other things), pain (and lots of it!), and a loooooooo(etc.)ng recovery. I needed help rolling over in bed. I couldn't sit up without extreme pain. Walking, sneezing, coughing, and pretty much <em>moving</em> became unforgetable experiences.</span><br />
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<span style="font-family: Verdana;">When I realized that my surgery couldn't untwist my body, but only straighten my spine, I struggled a lot emotionally. I was still wearing a brace (which was way to big due to being molded when I was still swollen from surgery), and literally every day I would stand in my closet and cry while trying to find something to wear. In my opinion, no one understood. They never would. And to an extent, it's true. But my focus was completely on myself. And praise God, He got my focus back where it should be-- on Him. Because then my life started turning around. I realized how good God is and what He has done for me. And that produced joy and thankfulness that, in turn, produced a desire to use my circumstances to help and encourage others who are struggling, as well.</span><br />
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<span style="font-family: Verdana;">Just think. God has allowed you to go through things that I will never experience. What are you doing with those trials and blessings? I challenge you to take the next step and purposefully do something to share it with others. It's one of the most exciting things you could do-- I promise.</span><br />
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<span style="font-family: Verdana;">Some people probably think I'm making a huge deal out of nothing. Others seem to put me on some sort of pedistal. But really, I'm just an imperfect human being who, despite my failures and weaknesses, is being used by an all-knowing, loving God who works all things together for good to them that love Him.</span><br />
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<span style="font-family: Verdana;">And that is why 4 years later, I am bursting with excitement as I think about where I was and what God was doing in my life in that hospital bed. God is beyond good!</span><br />
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<span style="font-family: Verdana;">So in honor of this newly founded "National Spinal Fusion Awareness Day," here are some pictures that will show you (and remind me!) why this day means so much to me.</span><br />
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Katiehttp://www.blogger.com/profile/17203510219768795587noreply@blogger.com0tag:blogger.com,1999:blog-50164848271175505.post-79518974274891178602013-10-28T20:32:00.002-04:002013-10-28T20:32:28.377-04:00Why?<span style="font-family: Verdana, sans-serif;">Everyone asks this question at some point. And it's probably the most difficult question out there to answer. It comes in many forms. Why do people suffer? Why is there so much pain and hurt in life? Why is there no cure? Why wasn't I healed? All of these questions can be summed up in one ultimate question. Why do bad things happen?</span><br />
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<span style="font-family: Verdana;">Nothing I say here is new. Entire books have been written on this last question. But I am going to confidently present you with this truth in the form of my personal experience. </span><br />
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<span style="font-family: Verdana;">Recently, an atheist asked me why I give credit to God if it clearly didn't work for me and I wasn't healed. </span><br />
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<span style="font-family: Verdana;">No. I wasn't healed of my scoliosis. Yes. I went through extreme pain with surgery. I faced many disappointments. I had to give up some things to have this surgery. Even after praying for God's healing. So, why?</span><br />
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<span style="font-family: Verdana;">The fact that God didn't heal me doesn't prove His non-existence. In fact, quite the opposite. It's only because of God's love for me that He allowed me to go through this. Because of this surgery, I'm a much stronger person. I have found a new love for volunteer work at local charities, as well as hosting fundraisers for them. I love reaching out to hurting patients and their families through music. I have been able to help hundreds of people going through spinal fusions through my blog and YouTube video. My perspective has changed. God has changed me for the better through this surgery. And honestly, I wouldn't be who I am, or even where I am, today without having gone through this. </span><br />
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<span style="font-family: Verdana;">But the ultimate truth is this. The most horrific and painful experiences on this earth are nothing compared to what we deserve. Because every single one of us have sinned, we deserve nothing short of hell. There's no room for sin in heaven-- a perfect place. But that's where God's love comes in. He loves us so much that, despite knowing how sinful we are, He gave up His Son, Jesus Christ, to die on the cross for us, paying the price for us. But He rose from the dead and lives today, calling sinners to accept His offer of grace. And now those who turn from their sin and trust in Christ alone possess hope and satisfaction that comes from nowhere else.</span><br />
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<span style="font-family: Verdana;">When I remember that, I have nothing but joy and thankfulness. Not only does God love me enough to give up everything for me, but He also carefully and beautifully plans my life-- spinal fusion included-- to mold me into the person He wants me to be. </span><br />
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<span style="font-family: Verdana;">So instead of asking why bad things happen, reflect on what we truly deserve, and then we see God's love and goodness.</span>Katiehttp://www.blogger.com/profile/17203510219768795587noreply@blogger.com0tag:blogger.com,1999:blog-50164848271175505.post-50802353112520029602013-09-14T13:41:00.000-04:002013-09-14T13:41:45.775-04:00Post-Camp Reflections<span style="font-family: Verdana, sans-serif;">Camp. There's nothing quite like it. And it's going to be listed as yet another life-changing experience. </span><br />
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<span style="font-family: Verdana, sans-serif;">It was stretching. We had one week of staff training, and then we hit the ground running for 10 more weeks with campers. There were so many fun and sometimes strenuous activities. We played several intense games a day (that usually involved running, water, big balls, etc.), we went tubing (a LOT!), swimming at the lake and waterfalls, hiking, climbing tons of stairs to each meal, paintball, zip lines, boating, sand volleyball, obstacle courses, a LOTS of jumping and cheering! </span><br />
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<span style="font-family: Verdana, sans-serif;">It was physically and emotionally draining at times. Each week approximately 8-9 campers were under my leadership-- campers from very different backgrounds, experiences, and beliefs. But it was awesome to see all my campers come together and become close friends, many of which continued their friendships after leaving camp. </span><br />
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<span style="font-family: Verdana, sans-serif;">During my last week of camp, I finally had a camper who had scoliosis! (I knew it was coming!) She was still in elementary school, but had a small scar on her neck where she had surgery, due to having neck problems which caused her scoliosis. </span><br />
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<span style="font-family: Verdana, sans-serif;">But the most rewarding part of camp was seeing kids come with so much hate toward people in their lives, bitterness, and a general bad attitude about life, and by the end of the week they realized their problem. Many of them needed Christ. They knew about God, but they didn't have a relationship with Him. And they certainly didn't have the hope of being in heaven with Him when they die. By the end of the week, the change in my campers' lives made me spending 11 weeks of my summer out of my comfort zone completely worth it. </span><br />
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<span style="font-family: Verdana, sans-serif;">And yes. Everyone appreciated my perfect posture. Even at camp. </span><br />
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Katiehttp://www.blogger.com/profile/17203510219768795587noreply@blogger.com1tag:blogger.com,1999:blog-50164848271175505.post-81852096286763360832013-08-17T22:13:00.001-04:002013-08-17T22:13:48.028-04:00The End... <span style="font-family: Verdana;">but not really. This Wednesday was my very last post-op appointment at Shriners Children's Hospital in Chicago as a patient, which brings this journey to an end.</span><br />
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<span style="font-family: Verdana;">It's been an incredible journey. It began with my diagnosis at 6 years old, bracing beginning at 11, which continued until surgery at 17. Here I stand, at 21, no longer a scoliosis patient. </span><br />
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<span style="font-family: Verdana;">And now I continue another journey, one I began almost four years ago-- a journey on the other side of scoliosis. The scoliosis is still there, but at a smaller degree, and will forever be, now with two rods and 18 screws. But I'm on the other side. Those years of anticipation and wonder about the possibility of surgery are over. Now I use my past experiences to meet others, help those struggling with the same things I faced, and show the world that God is truly an amazing God. </span></div>
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<span style="font-family: Verdana;">And in case you're wondering-- it's not the end of my blogging, either. I'm living life as a spinal fusion survivor. There's always something to blog about!</span></div>
Katiehttp://www.blogger.com/profile/17203510219768795587noreply@blogger.com2tag:blogger.com,1999:blog-50164848271175505.post-14196500557081127862013-05-22T18:24:00.002-04:002013-05-22T18:24:56.805-04:00Camp!<span style="font-family: Verdana, sans-serif;">In a few short days, I'll be putting my spinal fusion to the test by heading 10 hours away to counsel at a summer camp. For 10 whole weeks, I will lead a cabin of about 8 girls in hiking, swimming, playing games (the good physical ones like tug of war, relay races, big ball volleyball, etc.), tubing, and all sorts of fun stuff.</span><br />
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<span style="font-family: Verdana;">I remember going as a camper in high school, and the girls in my cabin always thought I was either a snob or a model at first because of my posture. And then they saw my brace! I had to explain my situation many times. Now I'm going back as a counselor after a spinal fusion. As a 17 year old camper, I certainly had no idea what the near future was going to be like for me. As a 20 year old counselor, I can look back and praise God for how He has worked in my life.</span><br />
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<span style="font-family: Verdana;">People have asked me if I'm worried about my back. And my answer is no. I promised my mom to be careful, so I will, but I know what my back can handle-- which is probably everything except the giant swing. </span><br />
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<span style="font-family: Verdana;">But most importantly, I have the opportunity to impact an average of 80 girls' lives this summer. And that is something that I take even more seriously than my back. It's going to be a great time, but there are also girls out there who are hurting-- girls that will need me that week. And I consider it a privilege to be a living example of someone with so many faults and imperfections, saved by God's grace, and transformed into someone who has a passion to live for Christ and point others to Him. </span><br />
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<span style="font-family: Verdana;">So I'm taking a short break from blogging, but some weekend when I get the chance, I will update with pictures and posts. And yes, Mom, you will be able to see how well my back is doing. </span><br />
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<span style="font-family: Verdana;">Have a great summer, and don't forget that June is National Scoliosis Awareness Month!</span>Katiehttp://www.blogger.com/profile/17203510219768795587noreply@blogger.com4tag:blogger.com,1999:blog-50164848271175505.post-851716833767992612013-05-20T23:12:00.000-04:002013-05-20T23:18:31.153-04:00Meet My Mentor<span style="font-family: Verdana, sans-serif;">My last semester of undergrad was a very different one. Previous semesters were typically packed with 20 credits, volleyball, several rehearsals a day, work, practicing, and lots of reading/studying. Every day was filled with the things I loved to do. And then came. . . STUDENT TEACHING. </span><br />
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<span style="font-family: Verdana;">I dreaded the thought of student teaching since the day I knew it was a requirement for music ed. I never had much experience with children, much less teaching a classroom full of them. That was my sister-- the kid-lover. I was happy practicing piano alone all day and playing sports with my older friends. </span><span style="font-family: Verdana;">But in order to graduate, I had to complete this semester-- <em>and</em> pass. Originally signed up for high school band, I decided it was time to take the hard route to give me the much needed experience of elementary school general music. So I made the switch and went to block classes every day beginning at 7am feeling sick to my stomach at the very thought of soon having to know how to interact with these kids, teach them meaningful content, and be graded on how well I do it! </span><br />
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<span style="font-family: Verdana;">Ok, ok. So I had to endure a whole semester of doing something I never imagined doing, ended up loving it, and now want to do it for the rest of my life. What does this have to do with scoliosis? That's where my mentor teacher comes in.</span><br />
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<span style="font-family: Verdana;">I had been praying that God would place me with someone who would not only help me through student teaching, but help me learn and grow the most I can from it. Your mentor teacher can either make or break your student teaching experience. And thankfully, mine was AMAZING! (Both the teacher and the experience!) She showed me what it's like to be the best teacher you can be, to plan and organize well, and to love your students. Despite facing many obvious hardships during one single semester, she proved to be a faithful teacher who put others before herself. And on top of all of that, she is a fellow spinal fusion survivor-- <em>twice</em>! It was amazing to find out that she too had surgery for scoliosis about the same age I did, only to have a second surgery after pulling her rod loose. And here she is today, excelling at what she loves, making an impact in the lives of young children through her love of music. And I will never forget the impact she has had in my life. This year, she ended her music teaching career by retiring after 33 1/2 years of teaching, and I begin what I hope to be a similar path-- using what God places in our lives to share our passions, make a difference, and point others to Him. </span><br />
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<span style="font-family: Verdana;">Scoliosis or no scoliosis, we all have things God has specifically chosen us to experience. What will you do with it? </span>Katiehttp://www.blogger.com/profile/17203510219768795587noreply@blogger.com1tag:blogger.com,1999:blog-50164848271175505.post-66064252198647974022013-05-01T23:21:00.002-04:002013-05-01T23:28:02.895-04:00Familiar Favorites 2<span style="font-family: Verdana;">After a successful benefit concert for the Ronald McDonald House Charities in Indiana this past summer (raising $1,200), I knew it would be even more fun to do it at college with all my music friends. </span><br />
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<span style="font-family: Verdana;">There were so many more obstacles this time around than the previous concert. Finding a venue, printing invites/programs, advertising, finding performers, avoiding date conflicts, getting performance permissions, setting up rehearsal times with 21 performers, and the list goes on. And on. And still on. All during my final semester of undergrad, and the scariest, by far-- student teaching. But this concert was a dream of mine, so, naturally, I pursued it anyway. </span><br />
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<span style="font-family: Verdana;">There were many times when I wanted to give up. Times when I thought it was impossible to pull it off. Spending my evenings (after days of teaching) on the phone, going to meetings, sending emails, rehearsing... I seriously wondered if it woud be worth the effort and time. And then two of my performers got sick the night before and the day of the concert.</span><br />
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<span style="font-family: Verdana;">But the effort paid off, because on Friday, April 5th, around 80 people attended the fundraising concert in Greenville-- most of which were students. In fact, when I saw the huge majority of students, I was a little worried about the amount we would raise. But I was determined to make it a really enjoyable evening for everyone anyway. And it definitely was! Every performer made me so proud! It was truly an enjoyable evening of beautiful and fun music. The wonderful response from the audience afterwards was overwhelming.</span><br />
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<span style="font-family: Verdana;">Having such an awesome evening of music would have been worth it to me, but we did raise money for the Ronald McDonald House, as well! These college students and adults (and even some of my performers!) gave sacrificially to help RMH. In fact, that night we raised $650! That's enough to house an average of <strong>13 families</strong> overnight! This amount will help make a difference for the people at RMH. It will serve as an opportunity to use the gifts God has given us to share His love with those in need. And on top of that, it was FUN!</span><br />
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<span style="font-family: Verdana;">So was it a lot of work? Yes. And stress? Well, yes. But was it worth it? YES! So stay tuned for "Familiar Favorites" 2014-- the sequel! (Premiering somewhere in the USA... that's TBD.)</span><br />
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<span style="font-family: Verdana;">Thanks to all my performers for their excellent work and enthusiasm. Thanks to my professors for their many words of wisdom and help along the way. Thanks to those who made a difference with their giving. Thanks to my parents for their support every step of the way. And most of all, thanks to God who planned my life and allowed me to be born with scoliosis, and now I have a different perspective on life. </span><br />
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<span style="font-family: Verdana;">Click <a href="http://scoliosis-braceyourself.blogspot.com/p/rmh-benefit-concert-2013.html" target="_blank">here</a> for pictures!</span>Katiehttp://www.blogger.com/profile/17203510219768795587noreply@blogger.com4tag:blogger.com,1999:blog-50164848271175505.post-64013480742723768852013-01-27T23:20:00.001-05:002013-01-27T23:29:12.002-05:00The Other Side<span style="font-family: Verdana, sans-serif;">It's great to be on the other side. Every time I receive an email from potential surgery candidates, a flood of memories remind me of where I was three years ago. </span><br />
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<span style="font-family: Verdana;">The nerves of not knowing what to expect. The pain that comes with surgery. The frustration of not being able to do things that you should be able to do. The bonding moments with family. The excitement of seeing progress and getting restrictions lifted from the doctor. So many feelings.</span><br />
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<span style="font-family: Verdana;">Now as I hear from others through my blog and video, I get the opportunity to share my experiences to do what I can to help others make this surgery just a little bit easier. </span><br />
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<span style="font-family: Verdana;">This summer someone contacted me after seeing my video. Her daughter was having surgery in June. So we met up for lunch and had a great time talking. </span><br />
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<span style="font-family: Verdana, sans-serif;">Paris is on the other side now, and soon after her surgery, she even came to my fundraising concert for the Ronald McDonald House Charities! We still keep in contact today.</span><br />
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<span style="font-family: Verdana;">Recently, I got an email from someone whose daughter is having surgery tomorrow morning. I also found out that even though they are from a different state, she is having surgery at the Shriners Children's Hospital ten minutes away from my college! So tonight I had the opportunity of meeting up with them and sharing experiences.</span><br />
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<span style="font-family: Verdana;">Best wishes to Laura and her family this week! It's definitey not easy, but it will be worth it. You are in good hands. Pretty soon you will be on the other side!</span>Katiehttp://www.blogger.com/profile/17203510219768795587noreply@blogger.com4tag:blogger.com,1999:blog-50164848271175505.post-15596100927861344482012-12-12T22:03:00.002-05:002012-12-12T22:03:43.382-05:00Dreaming of a White Christmas<span style="font-family: Verdana, sans-serif;">A white Christmas, at home and in no pain. That's probably what the kids at Shriners Hospitals for Children are dreaming of this holiday season. </span><br />
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<span style="font-family: Verdana;">Three years ago, I stayed in that hospital in Chicago for about a week for my spinal fusion. And ever since, I've had a new appreciation for life and health. There are so many kids in those hospitals that are going through so much, and being there during the Christmas season certainly doesn't help much.</span><br />
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<span style="font-family: Verdana;">So today, on 12/12/12, a group of music students took a (much needed) break from final exams and took a trip to the Shriners hospital in Greenville. </span><br />
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<span style="font-family: Verdana;">We were placed in the lobby so the children in ICU and the hospital rooms could hear us, as well as the workers, parents, nurses, and other patients there for check-ups, on first and second floor. </span><br />
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<span style="font-family: Verdana;">The people at Shriners today were able to hear some Christmas cheer to hopefully make their long recoveries just a tiny bit easier. But more importantly, they were able to hear the good news through our songs-- the good news that Jesus Christ came to earth as a baby, lived a perfect and sinless life, died for our sins, and rose again! And that good news gives us reason to rejoice during the hardest trials of life. "Christ the babe was born for you."</span></div>
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<span style="font-family: Verdana;">Merry Christmas to the brave patients, their strong parents, and the compassionate workers at Shriners Hospitals for Children. </span></div>
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Katiehttp://www.blogger.com/profile/17203510219768795587noreply@blogger.com0